Chronicle of a Stem Cell Transplant (and on through to the other side)

Sunday, November 28, 2010

Just a Quick Post to Say

...I am still not feeling great, but "they" say I am making improvements, so I guess I will go with that.  I am still in bed a lot of the time, have lost a lot of weight, and am having to regain my muscles/strength to walk without worrying everyone.

Since I last wrote, I've started a new chemo, Revlamid/Lenolinomide, which is just one pill taken orally for 21 days, then 7 off. I've just finished the 21 days and haven't had any major side effects, but because it is only one capsule daily, it will take a few weeks to see if it is having any effect or if it is going to give me any trouble.

My skin is still uncomfortable due, now, to excessive dryness, so it burns when I stretch.  What I wouldn't give to be comfortable in my own skin again.  I've had more than a few cries these past few weeks. I just want to be a able to do at least some of the things I used to take for granted, like take Finn for a walk.

Monday, November 01, 2010

Well, After Last Time's Rather Heavy Post...

I thought I'd do a light and easy hair update. Besides, who can stay sad when George Michael is wiggling his butt in your face.

But I digress...

Now, where has all my hair gone?

South, apparently...

It seems just one dose of the Vinblastine caused it to start falling out, and, like last time, it also changed the texture. It seemed really waxy and hard to brush, but it was when I woke with a Marleyesque-dreaded unicorn horn that I knew I had to take matters into my own hands, hence the cut with my Ikea scissors.

A little Pat Benatar, but not bad, I thought. Until...

My TCM practitioner, yes, TCM practitioner, of all people, informed me as I was lying on her table that...I had "a tail."

Of hair? I implored in horror.

Yes, about this long...

Well, stirrup my pants and put me in an Wham video.

Who could know such a thing when one cannot see the back of one's head? I thought that's what friends and family were for - to tell you when you have broccoli in your teeth or when your fly is undone. Or, say, when you are sporting an 80s rat tail some twenty-five years after the fact. 

I thought you people were supposed to be looking out for me. Meanwhile, I'm strutting around town (ok, maybe just the bedroom) all week with a tail that was apparently long enough to braid. Yes (be still my beating heart), braid.

But I'll get you, my pretties.

There's nothing a little El Debarge for Christmas can't fix.

(and thanks, Jenn, for tidying me up)